Resources
Global Skeletal Dysplasias and Dysostoses Clinics
We need to hear from you!
This list is not complete!
Please email jhoover2@jhmi.edu with the name, link and contact information for patient support groups that should be listed here. This will be a wonderful resource for ISDS members and our patients.
*Information listed here was submitted by an ISDS member. Submitter provided all content shown here. Content was reviewed by the website committee and the EC for accuracy and uniformity. ISDS is not vouching for the clinics or people listed. Any ISDS member who submitted their contact information on this directory must be willing to see patients with skeletal dysplasias to diagnose, manage and connect the patient to other healthcare providers. This directory is not to be utilized for research recruitment.